Patient & Public involvement is at the heart of the Health Service Executive (HSE), St. James’s Hospital and the Clinical Research Facility (CRF). Participating in Clinical Research can assist in delivering a quality health service, can enhance patient outcomes and provide excellent partnerships between patients and clinical staff.
- The CRF PPI ‘HEART’ initiative is concerned with empowering individuals to have a voice within the research process at all stages.
What is Patient & Public Involvement in Research?
- “Research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ ‘them’ (INVOLVE, 2014)
- The goal of effective PPI is to create a valued partnership between the public, patients & researchers to ultimately improve research quality, relevance & outcomes (IHR, 2015).
Why involve patients & public members in research?
- To ensure patients are informed about research that is relevant to them.
- To understand their needs & what they want.
- Improve design, conduct & dissemination of research.
- To make a difference to patient & population health outcomes
The role of PPI Officer in SJH CRF:
- Plans and facilitates PPI involvement, participation and engagement.
- Develops PPI initiatives with tangible goals e.g. vidi-script on hospital wi-fi informing users of the CRF and ongoing research within the Hospital.
- Provides advice and guidance on involving patients and public in research
- Assists with the PPI section of research proposals
- Acting as a liaison between investigators and patient groups
- Facilitates PPI groups
- Helps disseminate research results to the public
For more information, contact Eilis at firstname.lastname@example.org or 014103906